Privacy Policy

Updated: 1st September 2026

Who we are:

Uncharted C CIC takes your privacy very seriously and is committed to protecting and respecting it. This privacy policy will provide you with information about how we collect, use, store and delete any personal data used at uncharted C and explains the privacy rights under law.

Engagement with our website or our services will be taken that you agree to how we collect, use, store and delete any personal data that we hold in accordance to the information provided in this policy.

The policy will be updated as and when it is needed and the latest version will be available on this page and with a date at the top showing when this policy was last updated.

What information we collect:

We may collect the following:

  • Contact details: you name, email address, address, telephone number

  • Health information: only if you choose to provide this information and provided consent

  • Additional information: other information/data that you provide during correspondence

  • Booking and billing information: Training package purchases, or other sources of booking e.g. talks, webinars, collaborations etc.

  • Anonymous data: collected from surveys or focus groups

  • Website data: IP addresses, cookies, visitor statics, and analytics from Squarespace, our website host. For more information about cookies please see our cookies policy.

Lawful bases for collecting personal information:

  • Consent

  • Contract

  • Legal obligation

  • Legitimate interest

How we collect this information:

  • When you contact us

  • Join our contacts list

  • Register to attend a training session, an event, talk, workshop hosted by us

  • When you apply to be a member of our Advisory Board or volunteer

  • Collaboration with cancer charities

  • Taking part in anonymous surveys

What we do with this information:

We primarily use the information we collect to respond to queries, provide services, create resources (informed by neurodivergent lived experience – focus groups, Advisory Board, uncharted C CIC), and illustrate impact. We also use the information we collect within booking and billing transactions and regulatory reporting.

How we share that information:

Uncharted C CIC will never sell, trade or rent your information. We do have several trusted third-party businesses who act as data processors on our behalf. They are:

  • Squarespace – our website hosts, and contact form

  • Microsoft 365 – our email, calendar and data storage (identifiable personal data is stored on password protected files on a permission managed site)

  • Quickbooks – for our accounting and invoices

  • Event platforms – e.g. Eventbrite

How long we store that information:

Data will only be kept as long as it is needed and for a reasonable amount of time:

  • Email correspondence – for 3 years

  • Contact List – will be stored securely until an individual requests their personal information is removed

  • Booking and collaboration clients – for a reasonable amount of time after we have finished working together

  • Anonymous data – is stored indefinitely for research and service improvement

How you can manage your data:

There are several ways you can manage your data, you can:

  • Request your data is deleted – at any time, without justification needed

  • Access your data – ask for a copy of your personal information that we hold

  • Request rectification – you can request to make corrections to the information that we hold for you.

For any of the above please email hello@unchartedc.org.uk with detail of the request in the subject line e.g. ‘Delete my data’, ‘Data Access Request’ or ‘Data Rectification Request’

External links:

Uncharted C CIC is not responsible for the privacy policies on any external links that are featured on this website. Please refer to their individual privacy policies.

How our site uses cookies:

For more information about cookies please see our cookies policy.

Changes to this policy:

This policy will be reviewed periodically, and any changes will be reflected by the date of last update at the top of this policy. The most current privacy policy will always be available on this website.

Contact information (for any comments, queries, concerns or complaints):

Uncharted C CIC

Dr Char Goodwin

CharG@unchartedc.org.uk